diploid triploid mosaic

Since my last post, my daughter Lola was diagnosed with a rare chromosome disorder called diploid triploid mosaic.

She is 2 and a half doing well but still does not walk talk or crawl, she is very smart and bright littl girl but had seriously low muscle tone and barely bares weight.

We have been on telly here in Ireland looking for answers on her condition ,we havent met a doctor yet who has heard of her condition.